Friday, March 13, 2009
On Writing
Hah! I read Steven King’s A Memoir of the Craft On Writing and feel I need to overhaul just about all I’ve written on Sophie so far. Dang! It is a great book. Every question I have had on writing my first novel, he answered succinctly.
Autism, Marcus, Me
As the signs of autism became more evident to me and my husband, we began to seek intervention. I called our local agency that handles special needs’ kids from 0-3 and said I needed my son evaluated. I told them, “I think he shows signs of autism.” An appointment was made and I took my son in for an evaluation. This evaluation determined that he had mild retardation and/or pervasive developmental disorder. (To this day PDD seems a vague and suspicious term). I remember Marcus receiving services and being evaluated again at a school site. It was actually the school district that officially gave Marcus the diagnosis of autism. With that diagnosis, we were able to put him in a special needs class at two-and-a-half. And so his “early-intervention” began.
Those are some facts from my now fuzzy memory of that time. Now here are some emotions. I felt punished. My older son, only 2 years older than Marcus had delays as well. However, he was doing quite well. At three years old, he was in an excellent communicatively handicapped class in Oakland. The teacher was dedicated and skilled at teaching the kids in her class to talk. Every minute of every day was spent on language acquisition. My older son’s success convinced me that intervention was all that was needed since he began to speak, play appropriately and was beginning to show signs of being well-adjusted. I felt hopeful, triumphant and proud. Then came Marcus. Why did I have a son who I could not make whole? This was my question. My answer was that I was being punished by God. I thought of every sin I had ever committed and asked for forgiveness in hopes my son would talk to me, play with his siblings, go to bathroom on his own and do everything else that is on the list of what is deemed “normal”. I felt guilt. After all, I was his mother, I must have done something to prevent his healing.
The times when guilt reared up and taunted me the most was at the IEP meetings, the meetings where the “team” - myself, and everyone else involved in Marcus’ education comes together to hash out a plan for his success in the classroom. What those meetings were for me was a time for the team, myself excluded, to reveal as little about available services as they could, and to prove that they were the experts, not me, about my son’s behaviors and educational needs. I wish my next line was, “I was confident, informed, and the best advocate ever for my son,” but that is not true. What is true, is that I felt guilty as charged about my son’s condition (I, the accuser) and I acted accordingly for too long. It took many IEP meetings for me to stand firm for what I believed Marcus needed and to demand services that were within my parental rights to have. This meant accepting the possibility that I might have to take the district to hearing if necessary. I am fine with that idea now, but I was not 10 years ago. One belief and truth is that Marcus has needed a one-on-one aide since he started school - primarily because his attention span is so short, and his activity level is very high. From the start of his education, school districts have denied Marcus that service. It took till he was 11 years old for that service finally to be granted.
Then there were comments. In one IEP meeting, an occupational therapist, who was denying Marcus services throughout the meeting commented that the services she provided didn’t work and she didn’t have any more available so therefore she wasn’t going to be working with Marcus anymore. She went on to say at least four times in a row “the parent has to carry through at home with what the teacher is doing at school or the IEP goals are pointless.” Her point was true. The fact that she said it that many times crushed me. Incompetent, irresponsible, uncaring and lazy is what I heard four times. That comment echoed in my head many days after that meeting. My guess is that the therapist probably didn’t even remember the details of the meeting after her work day was done. By the way, the subject was potty training - one of the most difficult challenges I faced with Marcus.
Well, I feel I should stop for now. I don’t want to write too much for one blog. I will continue on my emotions about Marcus in my next blog about Autism, Marcus, Me. Ciao!
Those are some facts from my now fuzzy memory of that time. Now here are some emotions. I felt punished. My older son, only 2 years older than Marcus had delays as well. However, he was doing quite well. At three years old, he was in an excellent communicatively handicapped class in Oakland. The teacher was dedicated and skilled at teaching the kids in her class to talk. Every minute of every day was spent on language acquisition. My older son’s success convinced me that intervention was all that was needed since he began to speak, play appropriately and was beginning to show signs of being well-adjusted. I felt hopeful, triumphant and proud. Then came Marcus. Why did I have a son who I could not make whole? This was my question. My answer was that I was being punished by God. I thought of every sin I had ever committed and asked for forgiveness in hopes my son would talk to me, play with his siblings, go to bathroom on his own and do everything else that is on the list of what is deemed “normal”. I felt guilt. After all, I was his mother, I must have done something to prevent his healing.
The times when guilt reared up and taunted me the most was at the IEP meetings, the meetings where the “team” - myself, and everyone else involved in Marcus’ education comes together to hash out a plan for his success in the classroom. What those meetings were for me was a time for the team, myself excluded, to reveal as little about available services as they could, and to prove that they were the experts, not me, about my son’s behaviors and educational needs. I wish my next line was, “I was confident, informed, and the best advocate ever for my son,” but that is not true. What is true, is that I felt guilty as charged about my son’s condition (I, the accuser) and I acted accordingly for too long. It took many IEP meetings for me to stand firm for what I believed Marcus needed and to demand services that were within my parental rights to have. This meant accepting the possibility that I might have to take the district to hearing if necessary. I am fine with that idea now, but I was not 10 years ago. One belief and truth is that Marcus has needed a one-on-one aide since he started school - primarily because his attention span is so short, and his activity level is very high. From the start of his education, school districts have denied Marcus that service. It took till he was 11 years old for that service finally to be granted.
Then there were comments. In one IEP meeting, an occupational therapist, who was denying Marcus services throughout the meeting commented that the services she provided didn’t work and she didn’t have any more available so therefore she wasn’t going to be working with Marcus anymore. She went on to say at least four times in a row “the parent has to carry through at home with what the teacher is doing at school or the IEP goals are pointless.” Her point was true. The fact that she said it that many times crushed me. Incompetent, irresponsible, uncaring and lazy is what I heard four times. That comment echoed in my head many days after that meeting. My guess is that the therapist probably didn’t even remember the details of the meeting after her work day was done. By the way, the subject was potty training - one of the most difficult challenges I faced with Marcus.
Well, I feel I should stop for now. I don’t want to write too much for one blog. I will continue on my emotions about Marcus in my next blog about Autism, Marcus, Me. Ciao!
The Opening Scene
The first five hundred words of my novel are written below and I hope they are an enjoyable read. I know how important the first page of a manuscript is so I am very interested in feedback about the beginning of Sophie’s tale. Any comments, suggestions are welcome. Have a blessed day.
Chapter 1
Arkansas’ mid July heat speaks intently to the skin. One can say, it yells at the flesh till it blankets it, making the owner acutely aware of her own movement, and finally cognizant of the relief of a breeze, no matter how slight it may be. The humidity in the air on this particular morning pushed Sophie’s small, eight year old frame off of her bed, with its dampening sheets and pillow case, and into the hallway of the small house she lived in with her mother and younger brother Simon. She hoped she was the only one awake because she could have the kitchen, the ice-cold milk, and corn flakes all to herself. Although it was just her and Simon in the house with her mother, Sophie felt constraint, lack of air. Something in their house made things desperate. She was too young to make sense of it, but she knew it was true. So a simple daily habit of eating cereal took on a deliberateness that to an observer may have seemed unnecessary. She grabbed the milk from the refrigerator, set it on the counter, grabbed the cereal box from the cupboard above her head, and then reached for her special orange and blue bowl and spoon. All was ready for her to begin her small feast when Simon came into the kitchen, eyes eager, hands ready to seize what his ears had heard down the hall, his prepared morning meal.
“Is that mine?” Simon enthusiastically called out as he rounded the corner from the hall into the kitchen.
“No, boy! Get yo’ own! You know Mama said you have to get yo’ own cereal now. You big enough!”
“Oh come on Sophie, make it for me. You do it better than me. I always spill!”
Sophie replied tiredly, “I don’t care if you spill. You have to get yo’ own! So do it!”
Simon stomped his right foot hard on the kitchen floor and said, “Fine, but I ain’t gon’ let you play with my army men no more. You too mean!”
“Yes you will,” Sophie taunted. “Cause if you don’t let me play with your army men, you cain’t play in my city I been buildin’ outside so you might as well quit tellin’ that tale. Just make yo’ food so we can go play. Plus, I will tell you more secrets once we get outside if you act right.”
Chapter 1
Arkansas’ mid July heat speaks intently to the skin. One can say, it yells at the flesh till it blankets it, making the owner acutely aware of her own movement, and finally cognizant of the relief of a breeze, no matter how slight it may be. The humidity in the air on this particular morning pushed Sophie’s small, eight year old frame off of her bed, with its dampening sheets and pillow case, and into the hallway of the small house she lived in with her mother and younger brother Simon. She hoped she was the only one awake because she could have the kitchen, the ice-cold milk, and corn flakes all to herself. Although it was just her and Simon in the house with her mother, Sophie felt constraint, lack of air. Something in their house made things desperate. She was too young to make sense of it, but she knew it was true. So a simple daily habit of eating cereal took on a deliberateness that to an observer may have seemed unnecessary. She grabbed the milk from the refrigerator, set it on the counter, grabbed the cereal box from the cupboard above her head, and then reached for her special orange and blue bowl and spoon. All was ready for her to begin her small feast when Simon came into the kitchen, eyes eager, hands ready to seize what his ears had heard down the hall, his prepared morning meal.
“Is that mine?” Simon enthusiastically called out as he rounded the corner from the hall into the kitchen.
“No, boy! Get yo’ own! You know Mama said you have to get yo’ own cereal now. You big enough!”
“Oh come on Sophie, make it for me. You do it better than me. I always spill!”
Sophie replied tiredly, “I don’t care if you spill. You have to get yo’ own! So do it!”
Simon stomped his right foot hard on the kitchen floor and said, “Fine, but I ain’t gon’ let you play with my army men no more. You too mean!”
“Yes you will,” Sophie taunted. “Cause if you don’t let me play with your army men, you cain’t play in my city I been buildin’ outside so you might as well quit tellin’ that tale. Just make yo’ food so we can go play. Plus, I will tell you more secrets once we get outside if you act right.”
Wednesday, March 4, 2009
Autism, Marcus, Me
Wow! The comments I received on my novel excerpt are tremendously helpful. This is proof that it's not the number of critiques but the quality of them that makes a difference. Thank all of you so much!
I will post more from my novel in a day or two. I want to shift to a subject, that thirteen years ago, I never thought I would have the knowledge of or inclination to speak about. It was at 1:15 p.m on Sept 6, 1995 that my life radically changed. At that moment, the first of my twin boys was born. His name - Marcus Ellington Torres. Fifteen minutes later, my second twin, Nathan Armando was born.
They were beautiful, healthy boys. Their development seemed quite normal the first few months of their life. Around month five or six however, I began to see traits in Marcus that concerned me. He would become rigid as a board at times when I picked him up. He sometimes cried for an hour straight as if he was in pain. It seemed nothing would calm him. He seemed afraid to crawl. In fact he didn't crawl until around seven months. He wouldn't walk until fifteen months. I thought, "I hope these delays are not signs of a bigger problem." I continued to watch him closely. As he began to grow into a toddler, I became less worried. He was very active, he played on his scooter with his twin. He laughed with his siblings. He would jump up and down and say "Hi daddy" when his father came home from work. In fact, his verbal communication skills seemed to be on track. I told myself, "I think he is o.k."
Marcus' behavior began to take a sudden turn around two-and-a half. Our family moved from northern to southern California. To this day I feel that move symbolizes Marcus' move into a world I couldn't tap into. He became fixated on objects. He would hold them in his hand all day and stare at them. He began pacing up and down hallways. He lost all form of verbal communication. The glaring signs of Autism were in my son's demeanor. In those days, my attitude was that he would get better. I would give him the early intervention he needed. I would give him speech therapy, occupational therapy, he would go to school. I thought that if I provided these things, my son would come back to me. This was not to be our journey. After that sudden turn - for the last eleven years - our family has lived with Marcus and his severe autism.
This blog is the beginning of another journey. The journey of, through writing, exploring how his life has affected all of us who know and love Marcus. In addition to reflecting on my family's struggle with autism, I also hope to encourage and educate others who are in a similar position, as well as those who are curious enough to read this blog. So ciao, until I blog again...
I will post more from my novel in a day or two. I want to shift to a subject, that thirteen years ago, I never thought I would have the knowledge of or inclination to speak about. It was at 1:15 p.m on Sept 6, 1995 that my life radically changed. At that moment, the first of my twin boys was born. His name - Marcus Ellington Torres. Fifteen minutes later, my second twin, Nathan Armando was born.
They were beautiful, healthy boys. Their development seemed quite normal the first few months of their life. Around month five or six however, I began to see traits in Marcus that concerned me. He would become rigid as a board at times when I picked him up. He sometimes cried for an hour straight as if he was in pain. It seemed nothing would calm him. He seemed afraid to crawl. In fact he didn't crawl until around seven months. He wouldn't walk until fifteen months. I thought, "I hope these delays are not signs of a bigger problem." I continued to watch him closely. As he began to grow into a toddler, I became less worried. He was very active, he played on his scooter with his twin. He laughed with his siblings. He would jump up and down and say "Hi daddy" when his father came home from work. In fact, his verbal communication skills seemed to be on track. I told myself, "I think he is o.k."
Marcus' behavior began to take a sudden turn around two-and-a half. Our family moved from northern to southern California. To this day I feel that move symbolizes Marcus' move into a world I couldn't tap into. He became fixated on objects. He would hold them in his hand all day and stare at them. He began pacing up and down hallways. He lost all form of verbal communication. The glaring signs of Autism were in my son's demeanor. In those days, my attitude was that he would get better. I would give him the early intervention he needed. I would give him speech therapy, occupational therapy, he would go to school. I thought that if I provided these things, my son would come back to me. This was not to be our journey. After that sudden turn - for the last eleven years - our family has lived with Marcus and his severe autism.
This blog is the beginning of another journey. The journey of, through writing, exploring how his life has affected all of us who know and love Marcus. In addition to reflecting on my family's struggle with autism, I also hope to encourage and educate others who are in a similar position, as well as those who are curious enough to read this blog. So ciao, until I blog again...
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